Educational day

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The odyssey of the undiagnosed

Watch the day’s lectures on our YouTube page

  • Testimonials from an adult and a parent
  • Representative of SWAN UK (Syndromes Without a Name – UK)
  • Launch of the “Living without diagnosis” guide with the Rare Disease Foundation
  • Advice from a psychologist

Interview with family physician Dr. Andrée Yergeau:

“How to get doctors to
to think of the rare “
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